Charlie Gard’s loving parents, Chris and Connie, will use the proceeds of their fundraising to help other sick children.

 

The couple sadly announced yesterday they would be ending their fight to bring Charlie to the US for treatment due to the advanced stage of his irreversible genetic condition.

 

However, they plan to use the donations to help other sick children and will set up a Charlie Gard Foundation, according to The Mail Online. Yesterday, in court, as the decision to withdraw their legal action was announced, Charlie’s mum Connie spoke about their plans.

 

“One little boy has brought the world together, and whatever people's opinions are, no one can deny the impact our beautiful son has had on the world and his legacy will never ever die,” she said.

 

“Charlie has had a greater impact on, and touched more people in this world in his 11 months than many people do in a lifetime. 

 

 

“We could not have more love and pride for our beautiful boy. His body, heart and soul may soon be gone, but his spirit will live on for eternity and he will make a difference to people's lives for years to come,” she added.

 

As the couple now prepare to say their final goodbyes to Charlie, Connie said they wanted to help other families who found themselves in similar circumstances.

 

“As his mum and dad, we will make sure of that. We owe that to our boy. We will do our utmost to ensure that no parents have to go through what we have been through, and the next Charlie that comes along will get this medicine before it's too late, and Charlie will save many more lives in the future - no doubt about that.”

 

The couple had raised over £1.3 million to fund experimental nucleoside therapy in the United States; however, after a lengthy legal battle to try and bring Charlie to the US, the couple have now ended their fight.

 

 

An American expert had flown in to examine Charlie last week, but sadly, an MRI revealed the damage to the little boy’s body was irreversible.

 

Grant Armstrong, the family’s lawyer, said: “Charlie has waited patiently and peacefully for his right to receive treatment to be realised. Sadly, due to the considerable delay…the window of opportunity has been lost for Charlie.

 

“His legacy will be to support other young children and families faced with similar circumstances.”

 

We are thinking of the family at this very sad time.

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