In this episode, Laura chats to our very own Hollywood actress Victoria Smurfit and her daughter Evie about her diagnosis with a life-limiting sight loss condition.
Victoria shares her parenting journey from diagnosis to one of action in finding new treatments and ultimately a cure powered by greater investment in research. Working with Fighting Blindness, Victoria and her daughter Evie, who recently turned 14 years old, hope to inform and inspire others who may be living with the rare genetic condition and create a supportive community for the degenerative condition brought on by the onset of puberty.
Victoria and Evie stole the hearts of the nation during their appearance on the Late Late Show on Friday, November 16. Viewers were in awe of their sheer honesty, bravery and Evie’s inspiring outlook on life with Stargardt’s Macular Dystrophy.
The rare genetic condition causes the deterioration of the macula and surrounding retina and will eventually cause blindness.
#MumTruths NEW Episode: After her #LateLateShow appearance, listen to the FULL story from @VictoriaSmurfit & daughter Evie share their journey in face of adversity. Listen here: https://t.co/hG8Q51oB1b @fight_blindness @helpinghollesst #retcamappeal #latelate pic.twitter.com/Mq5zT5rtRv— MummyPages Ireland (@MummyPages) November 17, 2018
Stories like Evie’s help us realise just how much we take our health for granted. The remarkable young woman has really moved us and we’re sure her story will continue to empower others.
For all those moments of joy, modern parenthood comes with more pressures than ever before. Talking about our personal journeys and sharing these #mumtruths is our way to help you find your path and our new podcast series aims to do just that.
Find our #mumtruths podcast on iTunes, Spotify or whatever podcast platform you already use. Alternatively listen to it here on MummyPages. Don’t forget to ‘Subscribe’ so that you are first to get notified when each new episode is available.