When Cara and Glenn O'Neill's little girl, Eliza, was diagnosed with a neurological disease called Sanfilippo syndrome, they were heartbroken.
The disease begins to affect children aged 5 and is fatal at a young age. Children diagnosed with Sanfilippo syndrome will eventually stop being able to speak, walk and feed themselves.
Eliza's diagnosis came with much concern and research into this syndrome by her parents. They found that a gene therapy had been successful for mice but unfortunately a clincal trial could not be carried out as they needed $2.5 million in funds.
To try and get this clinical trial up and running, Eliza's parents got some help from Benjamin Von Wong, a Canadian filmaker who helped them to create a video to raise awareness for Eliza.
Eliza's mum, Cara, spoke about the efforts saying, "as a parent, you have to be the advocate for your child."
So far, the video has helped the O'Neill's to raise $380,000 for Eliza. There is also a website called SavingEliza.com.
